Guest / Limited Access /

Amy Julia Becker responded to recent debates over some preliminary research showing that drug therapy might improve cognitive function in people with Down syndrome. Several high-profile bloggers wrote about this research from the angle of whether Down syndrome should be cured, if it could be. The question led to long comment threads discussing the intersection between disability and identity. By curing Down syndrome, would you be altering the person with Down syndrome to such an extent that you would be tampering with their identity?

Becker's response—besides pointing out the obvious jump-the-gun factor that the research cited was on mice, not humans, and that it is potentially a treatment and not a cure—was subtitled "Why we shouldn't be too quick to think disabilities need correcting." In discussing her daughter's Down syndrome, Becker brought up the frequently cited Christian narrative whereby disease, illness, and disability result from the Fall and the fallen nature of the world we live in. She objects to this narrative for her daughter, saying, "Our daughter is fallen, yes, but she is no more fallen than I am. She is no more or less broken, no more or less beloved."

As someone who embraces the fallen-world narrative in explaining my own genetic disorder, I was caught up short by Becker's dismissal of that narrative as explanation for illness and disability. When she used the term "broken," of course, she was referring to spiritual brokenness. But as someone with osteogenesis imperfecta (OI), also known as brittle bone disease, I can't help hearing it literally as well. I am more broken than other people. My body does not function as it should. Bones support our bodies' most essential functions. The reason ...

Subscriber access only You have reached the end of this Article Preview

To continue reading, subscribe now. Subscribers have full digital access.

Read These NextSee Our Latest
RecommendedTragedy, Tradition, and Opportunity in the Homosexuality Debate
Tragedy, Tradition, and Opportunity in the Homosexuality Debate
We need a better approach to the traditional biblical ethic on sexuality.
TrendingPope Francis Learns What Rick Warren, Russell Moore, N. T. Wright Think about Marriage
Pope Francis Learns What Rick Warren, Russell Moore, N. T. Wright Think about Marriage
(UPDATED) Warren turns Vatican conference into 'revivalist meeting,' while Moore explains why marriage crosses theological boundaries.
Editor's PickOur Bodies Were Made for You, O Lord
Our Bodies Were Made for You, O Lord
We've been designed, right down to the DNA, to love and serve our maker.
Comments
Christianity Today
I Want to Be Accepted As I Am, But I’ll Take a Cure Too
hide thisAccess The Archives

In the Archives

February 2010

To continue reading, subscribe now for full print and digital access.