Jimmy Jenson's story inspires me. And it makes me very sad, because across the globe people believe that a life like his is not possible for their child.
Professor John Swinton "The most hedonistic, intellectually astute athlete can be ill and in need of healing (restoration to right relationship with God) and the most deeply impaired individuals can be healthy and indeed beautiful."
Alison Piepmeier explains her suspicions about new research related to Down syndrome: "My description that I’m now trying to make into a catch phrase is that disability is an embraceable form of human diversity."
"I wonder if there's any hope of entering an age with a new story, a story that isn't as dramatic as Heath White's or Chloe Ashton's, a story that doesn't rely upon an entry point of grief, a story that doesn't need the tension of transformation."
Stephanie Brock reflects on her son Adam and Down syndrome: "...we want to cure Down syndrome because it's not self-imposed, and we chafe as humans against anything we didn't decide or do for or to ourselves. We want to cure disability because it's not the right kind of difference, or difficulty, or suffering."
A guest post from Notre Dame Professor of Ethics Hans Reinders today: "Of course it can argued that [people with Down syndrome] at least have this one extra chromosome in common, otherwise they would not be identified as people with Down syndrome, but this observation tells us next to nothing about their lives. It does not inform the debate on whether humanity would be better off without DS in any significant way."
Philosophy Professor Aaron Cobb reflects on the life and death of his son Sam, who was born with trisomy 18, and what that might mean for research to silence trisomies: "we should consider whether these new techniques will heighten the fearful tendencies that push us into desperate and despairing attempts to immunize ourselves and our children from our fragility as humans."
"Does anyone have the right to change who people are intrinsically, to change a person’s identity and identification? To think that a person’s intelligence defines who they are and how they contribute to their community?" Blogger and mother Gary Bender reflects.