July 2012
In mid-July I was alone with my kids for six nights and I happened to come down with a nasty cold. We had just moved from New Jersey to Connecticut, so the house was still in boxes, and my list of things I was supposed to have done before Peter went away seemed longer than ever. ...
As many of you know, I've been working on an ebook about prenatal testing for a few months now. It's in the final stages, and one of the things I want to include in the book is resources for women and their families when faced with a prenatal diagnosis of Down syndrome. I asked ...
I play a game with my kids. When they are pouting or withdrawing from me or disappointed with me or think I'm disappointed with them, I hold up my thumb and index finger and say, "Do I love you this much?"
They know the answer by now, but the first time, they looked at me, a ...
I was asked to come up with my "Top Five Books About Special Needs" for the July/August issue of Christianity Today. In all honesty, they aren't necessarily my top five. I get paralyzed, first of all, at the prospect of naming a favorite anything, especially when it comes to ...
I have a new post up for the "Moms Decide" section of Parents.com, "What Summer Camp Has to Do with Obama's Tax Plan." It begins:
My memories of summer include bug bites, games of kick-the-can, swimming lessons, and countless hours curled up in a chair reading. My kids have finally ...
I'm headed to Chicago tomorrow to speak at the Bethesda Institute's Summer Institute on Theology and Disability. They asked me to write a blogpost to introduce some of the thoughts I'll be sharing on Wednesday. I wrote:
When our daughter Penny was diagnosed with Down syndrome ...
Really beautiful and profound reflection on what it means to be the body of Christ through reflection upon the art of Tim Lowly, whose daughter Temma has severe disabilities: The Broken Made Whole by Mark Sprinkle. He writes:
There is a sense in which we look at Temma and we ...
What does "preventive" mean?
Mark Leach (whose guest post this morning, "Supreme Court Unexpectedly Upholds Regulatory Elimination of Down Syndrome," created quite a stir) and many others take it to mean that the government is advocating the prevention of the birth of children ...
I asked Mark Leach, a lawyer whose daughter has Down syndrome, to offer a reflection on how the Supreme Court's recent ruling regarding the Patient Protection and Affordable Care Act would impact the lives of individuals:
A common reaction to the recent Supreme Court decision ...
I had the pleasure of meeting Ginnie Breen, co-author of I am In Here: The Journey of a Child with Autism who Cannot Speak but Finds her Voice a few months ago, and more recently the privilege of interviewing her about her experience as the mother of Elizabeth, her 14-year ...
In honor of summer, the Patheos Family Channel is giving away copies of books by its authors. Click here to leave a comment and be entered into a drawing to win a copy of A Good and Perfect Gift, and click here to see the full list of titles being given away.
I would recommend:
If this blog has seemed a bit disjointed for the past few weeks, or if you have tried to email me and feel as though the response might never come, well, we've been moving. The process started months ago, when I started to spend my afternoon hours with William "organizing." ...
As Bonnie Rochman reported for Healthland on Time.com last week:
Of the myriad things that can go awry with pregnancy, Down syndrome is perhaps the best known. In the past year, several new tests have become available to detect the condition prenatally, as early as 10 weeks of ...
I shared a post last week describing Jill's House, a facility that provides "a rhythm of care" through respite services for children with special needs. Today Jennifer Reynolds, who works at Jill's House, shares some thoughts about her experience:
Every child we have served at ...
I mentioned a few weeks ago (What Matters to you During this Election?) that I would be blogging about issues related to the upcoming election for Parents.com. My first post is up, and it is a response to the Supreme Court's recent decision to uphold most of the Affordable Care ...