February 2013

Displaying 1–15 of of 15 articles
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Blessed Imperfection: A Girl Learns to Jump and Her Mother, To Take Her First Steps by Kristina Robb Dover"Catholic theologian Hans Urs Von Balthasar has said “perfection consists in fullness of [life’s] journey;” and for this reason, none of us must ever think we have “arrived.” Each day with Sam reminds me I have a long way to go in becoming who God wants me to be." A guest post from Kristina Robb Dover

This guest post is one in a series I run every so often called Perfectly Human. These essays provide a picture of life with a disability in all its possibilities and limitations, gifts and struggles. 

We were standing on the steps outside the "wibrary," which is her favorite ...

Worth Reading: on Pain, Junk Food, Prison, TV, and Gender Equality

So during one of those restless nights last week in which I wish I had been praying (see last week's post, My Kids Keep Teaching Me How to Pray) but was actually reading stuff on my phone, I came across a number of articles you might like:

On love and grace and pain from poet ...

Asking the Wrong Questions About Down Syndrome?I wrote an article for the Atlantic about the history of prenatal testing and abortion and what that history means for us today.

I have a new post on the Health site of theatlantic.com. They named it Better Prenatal Testing Does Not Mean More Abortion, but my favorite part of the post is this paragraph:

In retrospect I wonder why I spent so much time convincing myself that the test results would be negative. ...
My Kids Keep Teaching Me How to Pray"I have so much in my head. I need to pray a lot."

Last week, I was putting Penny to bed, and she was all wiggly. She could probably tell I was getting impatient, because she said, pointing to her forehead, "I have so much in my head. I need to pray a lot."

I smiled at the time, but since then I've thought about her words more ...

How Prenatal Testing Helped my Family by Mona PatelMona Patel writes about how a prenatal diagnosis helped her diverse family (she is from India, her husband from the United States) prepare to welcome their youngest son, who has Down syndrome.

This post is part of a series of posts about prenatal testing that I am running in conjunction with the launch of my new ebook, What Every Woman Needs to Know About Prenatal Testing: Insight from a Mom who has Been There. For the other posts in the series, please go to the end ...

What We Think Today: Down Syndrome, Prenatal Testing, and the Questions We Face by George EstreichGeorge Estreich reflects upon two different Today Show stories: "In one, we’re supposed to feel good about the presence of Down syndrome; in another, about its absence. For me, the separation, the fact of two stories rather than one, is the heart of the problem."

I was thrilled when George Estreich offered this piece that compares two recent Today Show segments, both related to Down syndrome. If you don't know of George's writing already, I commend it to you for his thoughtful, careful, elegant approach to words and ideas. His memoir, ...

What We Do Instead of Celebrating Valentine's Day"I have started to believe that falling in love again and again takes a lot of very hard work..."

I have a new post up on the Huffington Post Parent's Page, in which I write about why I'm still in love with my husband all these years later. But I never actually disclose what we decided to do now since we don't celebrate Valentine's Day but we do have a date night every Thursday ...

Telling Penny About When She Was Born, and an Interview with Family LifeWhat I wish I could have said to Penny about how I felt after I learned she had Down syndrome...

Yesterday, Penny had a two hour delay from school. We took Marilee and William to their school, ran a few errands, and then shared a snack at our local coffee shop. She jumped in a few puddles in her snow boots (we still have about 18 inches left from last week's blizzard, along ...

Why Parent-to-Parent Support Matters with a Prenatal Diagnosis by Amy GeoffroyOne mother's experience of prenatal testing, and how she supports women now

I chose to run this post today, one in a series of personal experiences with prenatal testing, because it speaks to some of the problems with prenatal diagnoses and some of the solutions as well. Many people commented on last week's anonymous post about terminating a pregnancy ...

The Good Stories About Down SyndromeA story of inclusion and friendship, and a website for parents of kids with special needs.

There is so much I want to write in response to yesterday's post (I Tested and I Terminated and I Do Not Regret) and the comments here, on Facebook, and in my email inbox. Thank you to everyone who has participated in the conversation so far, and please continue to do so. I ...

I Tested and I Terminated and I Do Not Regret by AnonymousOne mother's story of a prenatal diagnosis of Down syndrome that led her to choose termination.

I should begin by thanking the anonymous contributor who was willing to share her story, an unusual one for this blog, about choosing to terminate her pregnancy after a prenatal diagnosis of Down syndrome. As I wrote yesterday, I ask readers and commenters to be honest and gracious ...

Prenatal Testing and Abortion--Is it Possible to Be Biased but not Judgmental?

I released an ebook (What Every Woman Needs to Know About Prenatal Testing) two weeks ago about prenatal testing. It covers my own experience of prenatal testing as well as providing information for women who are trying to figure out their own approach to testing. It's ...

Doctors Need to Understand Their Patients When It Comes to Prenatal Testing by Nancy IannoneWhen a patient says she doesn't want to terminate her pregnancy, doctors need to stop offering termination. Nancy Iannone shares her story and advice for medical professionals.

As a part of a series on personal experiences of prenatal testing (see Why I Wish I Had Chosen Prenatal Testing and I Regretted My Amnio), in concert with my new ebook What Every Woman Needs to Know About Prenatal Testing, Nancy Iannone shares her experience today and advice ...

If You are Pro-Life, Should You Pursue Prenatal Testing?Every pregnant woman will be offered prenatal testing for some genetic conditions. What should you do?

The American Congress of Obstetricians and Gynecologists now recommends that doctors offer all pregnant women prenatal testing, which can detect chromosomal conditions like Down syndrome before their babies are born. As a result, they all face a decision, or a series of decisions, ...

Worth Reading: on Prenatal Testing and the Meaning of Life and what they have to do with each other

Two articles worth reading. One, a Wired Magazine take on prenatal testing: This Simple Blood Test Reveals Birth Defects–And the Future of Pregnancy, and two, an Atlantic essay: There's More to Life than Being Happy. The Wired article describes a woman's decision ...

Displaying 1–15 of of 15 articles
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