Novelist Theresa Shea discusses her book The Unfinished Child, a story about two families struggling to imagine life with a child with Down syndrome (plus a chance to read a free copy...)
Part two of Theresa Shea's interview about her new novel, The Unfinished Child. She talks about the parallels between parents of children with Down syndrome and typically-developing kids, the relationship between choice and selfishness, and why fictional accounts of prenatal testing experiences matter.
"Medicine is part of culture, and so culture, good and bad, is refracted through medicine." George Estreich on medical ethics, culture, and inclusion, among other things.
Scientists think they have discovered a way to "silence" the chromosome that causes Down syndrome. We should be jumping for joy, right? I'm not so sure.
Once again we’re hearing news of a breakthrough in research on drug therapies to enhance the cognitive processing of people with Down syndrome. And once again, the discussions seem to fixate on the controversial notion of a “cure.” Why do we keep having the same conversation? A guest post by Columbia Univsersity Professor and author of Raising Henry, Rachel Adams.
In honor of Down Syndrome Awareness Month, a series of posts to address the problems and potentials of research to mitigate the effects of Down syndrome.
Mother and blogger Leticia Velasquez considers whether she would use gene therapy to mitigate the effects of Down syndrome for her daughter Christina: "How does her future look right now? Difficult, unless there is a medical breakthrough."
"What mega-vitamins are you taking to overcome your deficiencies?" Lawyer, bioethicist, and blogger Mark Leach considers what the golden rule has to do with treating Down syndrome.
What effect would a "cure" for Down syndrome have on our culture at large? What would it communicate about what and who we value? About what and who we are and want to be?
